Onze producten, publicaties, presentaties, etc.


  1. Accessibility and feasibility of experience sampling methods for mental health research with people with intellectual disability: Scoping of research and stakeholder views. Lianne Bakkum, Célinde Paalman, Annelieke Müller, Agnies van Eeghen, Carlo Schuengel. In: Journal of Applied Research in Intellectual Disabillities (04-01-2024).
  2. The development and validation of the S-scan-parental self-management support (S-scan - PS): A self-reflection tool for child healthcare professionals. Wong Chung, R., Willemen, A., Bakker, A., Maaskant, J., Voorman, J., Becher, J., Schuengel, C., & Alsem, M. (2024). In: Child: Care, Health and Development, 50(1), e13223.
  3. Understanding Burnout among Parents of Children with Complex Care Needs: A Scoping Review Followed by a Stakeholder Consultation. Patty, N.J.S., van Meeteren, K.M., Willemen, A.M. et al. (2024) In: J Child Fam Stud.
  4. Navigating the outcome maze: a scoping review of outcomes and instruments in clinical trials in genetic neurodevelopmental disorders and intellectual disability Annelieke R. Müller, Nadia Y. van Silfhout, Bibiche den Hollander, Dick H. C. Kampman, Lianne Bakkum, Marion M. M. G. Brands, Lotte Haverman, Caroline B. Terwee, Carlo Schuengel, Joost Daams, David Hessl, Frits A. Wijburg, Erik Boot, and Agnies M. van Eeghen In: Therapeutic Advances in Rare Disease (25-04-2024).
  5. Supporting self-determination of individuals with severe or profound intellectual and multiple disabilities according to relatives and healthcare professionals: A concept mapping study Kuld, P.B., Frielink, N., Schuengel, C., Embregts, P.J.C.M. (2024) In: Journal of Applied Research in Intellectual Disabilities.
  6. The prospective associations between autonomy support, basic psychological needs, motivation and well-being among people with a mild to borderline intellectual disability: a two-wave study Frielink, N., Schuengel, C., Ven, S.H.G. van der, Embregts, P.J.C.M. (2024) In: Journal of Intellectual Disability Research

Conferentiebijdragen & presentaties

  1. A qualitative study on the conceptualization of burnout from the perspective of parents of children with complex care needs (2024) Patty, N.J.S., Meeteren, K.M. van, Verdonk, M., Ketelaar, M., Schuengel, C., Willemen, A.M. Posterpresentatie op EACD 2024 Brugge, 29-5/01-06
  2. Parenting children with complex care needs: Parent perspectives on research and practice (2024) Willemen, A.M., Meeteren, K.M., Verdonk, M., Patty, N.J.S., Zahl, E., Morris, C. Mini-symposium op EACD 2024 Brugge, 29-5/01-06


  1. Burn-out bij ouders van kinderen met extra zorg (2024) Patty, N.J.S. & Meeteren, K.M. van,. Gastcollege bij vak Praktische en Pedagogisch Hulpverlenen, bachelor Pedagogische Wetenschappen VU Amsterdam.
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