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Publicaties

1. Accessibility and feasibility of experience sampling methods for mental health research with people with intellectual disability: Scoping of research and stakeholder views. Lianne Bakkum, Célinde Paalman, Annelieke Müller, Agnies van Eeghen, Carlo Schuengel. In: Journal of Applied Research in Intellectual Disabillities (04-01-2024).
2. The development and validation of the S-scan-parental self-management support (S-scan - PS): A self-reflection tool for child healthcare professionals. Wong Chung, R., Willemen, A., Bakker, A., Maaskant, J., Voorman, J., Becher, J., Schuengel, C., & Alsem, M. (2024). In: Child: Care, Health and Development, 50(1), e13223.
3. Understanding Burnout among Parents of Children with Complex Care Needs: A Scoping Review Followed by a Stakeholder Consultation. Patty, N.J.S., van Meeteren, K.M., Willemen, A.M., Mol, M., Verdonk, M., Ketelaar, M., Schuengel, C. (2024) In: Journal of Child and Family Studies.
4. Navigating the outcome maze: a scoping review of outcomes and instruments in clinical trials in genetic neurodevelopmental disorders and intellectual disability Annelieke R. Müller, Nadia Y. van Silfhout, Bibiche den Hollander, Dick H. C. Kampman, Lianne Bakkum, Marion M. M. G. Brands, Lotte Haverman, Caroline B. Terwee, Carlo Schuengel, Joost Daams, David Hessl, Frits A. Wijburg, Erik Boot, and Agnies M. van Eeghen In: Therapeutic Advances in Rare Disease (25-04-2024).
5. Supporting self-determination of individuals with severe or profound intellectual and multiple disabilities according to relatives and healthcare professionals: A concept mapping study Kuld, P.B., Frielink, N., Schuengel, C., Embregts, P.J.C.M. (2024) In: Journal of Applied Research in Intellectual Disabilities.
6. The prospective associations between autonomy support, basic psychological needs, motivation and well-being among people with a mild to borderline intellectual disability: a two-wave study Frielink, N., Schuengel, C., Ven, S.H.G. van der, Embregts, P.J.C.M. (2024) In: Journal of Intellectual Disability Research
7. Conceptualizing burnout from the perspective of parents of children with complex care needs Patty, N.J.S., Meeteren, K.M. van, Verdonk, M., Ketelaar, M., Schuengel, C., Willemen, A.M. (2024) In: PEC Innovation.
8. Reliability and Validity of the Diagnostic Interview Trauma and Stressors- Intellectual Disability in Adults with Mild Intellectual Disabilities or Borderline Intellectual Functioning Versluis, A., Mevissen, L., de Jongh, A., Schuengel, C., & Didden, R. In: Journal of mental health research in intellectual disabilities, 1-17
9. Effectiveness of a Multidisciplinary Expertise Team in the reduction of restrictive measures in sheltered care homes for people with an intellectual disability Schippers, B., Vandesande, S., van Nieuwenhuijzen, M., Frederiks, B., de Moor, M., Immers, D., & Schuengel, C. In: Journal of Intellectual Disabilities.
10. Development and evaluation of the Trauma Screener-Intellectual Disability: a post-traumatic stress disorder screening tool for adults with mild intellectual disability or borderline intellectual functioning Versluis, A., Schuengel, C., Mevissen, L., de Jongh, A., & Didden, R. In: Journal of Intellectual Disability Research.
11. Welke thema’s in sociale situaties zijn problematisch voor (jong)volwassenen met een licht verstandelijke beperking?, M.F. Werkman, M.M. van Rest. In: LVB Onderzoek & Praktijk (2024).
12. Volwassenen met een LVB en ernstige gedragsproblemen: Onderzoek naar het herkennen van PTSS en de effectiviteit van intensieve EMDR-therapie, A.E. Versluis. In: EMDR Magazine, 34, 20–22 (2024).
13. Traumabehandeling bij een verstandelijke beperking, A. Versluis, A. Hoogstad. In: Klik, 3 (2024).
14. Parent-perceived autonomy-supportive experiences and basic psychological needs of people with complex support needs: Development and preliminary psychometric evaluation of two questionnaires, J.M. van Tuyll van Serooskerken, A.M. Willemen, P.J. Embregts, C. Schuengel. In: Journal of Intellectual Disabilities (2024).
15. Opinions and beliefs of adults with intellectual disabilities or visual impairment about research with routine care data, M.M. van Rest, E.C.M. Heppe, R. Ras, M.A. Cullen, A. de la Croix, C. Schuengel, R.P. Hastings. In: Scandinavian Journal of Disability Research, 26(1) (2024).
16. Communities of practice for implementing methods to reduce involuntary care in intellectual disability care: Insights from tacit and experiential knowledge exchange, E.H. Bisschops, J.C. de Schipper, Z. Salhi, P.J.C.M. Embregts, C. Schuengel. In: Journal of Intellectual & Developmental Disability, 49(3), 286–297 (2024).
17. Dynamic testing of learning potential of children with moderate to severe intellectual disabilities: A Delphi study, M.L. Eding, M. Meeter, C. Schuengel. In: Journal of Research in Special Educational Needs (Accepted/In press).
18. Age at Entry into the Dutch Child Protection System of Children of Parents with Intellectual Disability: A Case-Control Study, L. Bakkum, C. Schuengel. In: OSF Preprints (2024).
19. Implementing the Multi-Disciplinary Expertise Team method to reduce involuntary care in intellectual disability care: Multi-methods study evaluating adaptation and effectiveness, E. Bisschops, L. Bakkum, J.C. de Schipper, B. Metselaar, S. van der Plas, P. Embregts, C. Schuengel. In: Journal of Intellectual Disabilities (2024).
20. Mental health in mothers and fathers of children with chronic disorders, E. Zahl, A.M. Willemen, T. Fredriksen, S.M. Kirchhofer, T.M. Vatne, S. Orm, M. Botta, C. Prentice, K.W. Fjermestad. In: PEC Innovation, 5, Article 100331 (2024).
21. PMT-module Veilig en Sterk − Psychomotorische behandeling van mensen met een licht verstandelijke beperking die seksueel misbruik hebben meegemaakt, M. Leeflang, I. de Leeuw, M. Burger, M. Welvering, J. van Busschbach, M. Scheffers. In: Hogeschool Windesheim, Zwolle (2024).
22. Representations of Motherhood in the Media: A Systematic Review, S.M. Mary, R. Duschinsky, L. Davis, S. Dunnett, B. Coughlan. In: Information, Communication & Society, 18(1), 169–186 (2024).
23. Implementing methods to reduce involuntary care: Studying normalisation processes in long-term care for people with an intellectual disability, E.H. Bisschops. PhD-Thesis – Vrije Universiteit Amsterdam (2024).
24. Seksueel misbruik bij mensen met een LVB: een psychomotorisch perspectief, M. Smit. In: Tijdschrift voor Orthopedagogiek, (3), p. 29 (2024).
25. Basic Psychological Needs and Mental Health in Adolescents with a Mild to Borderline Intellectual Disability, J.J. Westera, M.J. van der Molen, C. Schuengel. In: Journal of Mental Health Research in Intellectual Disabilities, 17(2), 138–157 (2024).
26. Heterogeneity in social participation among young people with vision impairment, E.C. Heppe, C. van Klaveren, I. Cornelisz, C. Schuengel, S. Kef. In: British Journal of Visual Impairment, 42(3), 599–611 (2024).

Conferentiebijdragen & presentaties

1. A qualitative study on the conceptualization of burnout from the perspective of parents of children with complex care needs (2024) Patty, N.J.S., Meeteren, K.M. van, Verdonk, M., Ketelaar, M., Schuengel, C., Willemen, A.M. Posterpresentatie op EACD 2024 Brugge, 29-5/01-06
2. Parenting children with complex care needs: Parent perspectives on research and practice (2024) Willemen, A.M., Meeteren, K.M., Verdonk, M., Patty, N.J.S., Zahl, E., Morris, C. Mini-symposium op EACD 2024 Brugge, 29-5/01-06

Onderwijs

1. Burn-out bij ouders van kinderen met extra zorg (2024) Patty, N.J.S. & Meeteren, K.M. van,. Gastcollege bij vak Praktische en Pedagogisch Hulpverlenen, bachelor Pedagogische Wetenschappen VU Amsterdam.